ISSN 2409-7616

Suslova T.F., Starovoitova L.I.

PSYCHOLOGICAL AND PEDAGOGICAL WORK WITH FAMILIES OF AUTISTIC CHILDREN

DOI: http://doi.org/10.15350/2409-7616.2022.2.33

UDC 37.015.3

Suslova T.F.1 (Moscow, Russian Federation) – E-mail: sibir812@mail.ru, Starovoitova L.I.2 (Moscow, Russian Federation) – E-mail: starovojtova@list.ru

1Moscow State Regional University

2Russian State Social University

Abstract. The article reveals aspects of psychological and pedagogical work with families in which children with autism spectrum disorders are brought up. The birth of a child with a diagnosis of autism spectrum disorder forms a large number of problems that parents primarily face. It becomes their responsibility to solve these diverse problems. As a rule, most of the problems, care and responsibility for the development and treatment of the child are assumed by mothers. The main task is to involve an autistic child in society, his social development, which is extremely emotionally costly. In these conditions, the process of emotional burnout of the parents of a disabled child and, above all, the mother begins to form. Paying special attention in the article to the problems of emotional burnout of parents in families raising autistic children, the authors identify the causes of emotional burnout of parents, give their classification. The recommendations of providing psychological and pedagogical assistance to families who are in a difficult psychological situation are formulated. The authors note that to date, many studies of maternal burnout are focused on understanding what makes mothers vulnerable to the occurrence of this condition – this is a low level of state support, the development of inclusive education, social attitudes, family factors and personal characteristics of parents and children. According to the authors, it is the family to a greater extent that can become the resource, the use of which will largely help parents cope with numerous problems, physical and psychological stress that appears at the birth of a child with health problems.

Keywords: autistic children, emotional burnout, parental burnout, mothers of children with autism spectrum disorders.

References:

  1. Balandova S.M. Study of parental burnout in foreign science and practice. Moscow, MGOU Publ., 2020, pp. 13-23. URL: https://elibrary.ru/item.asp?id=46115661
  2. Bazaleva L.A. Possibilities of studying emotional burnout in mothers in personality psychology. Bulletin of the Adyghe State University, 2010, no. 1, pp. 168-176. URL: https://elibrary.ru/item.asp?id=13568756
  3. Bazaleva L.A. Personal factors of emotional “burnout” of mothers in relations with children. Doct. Diss. Krasnodar, 2010. 202 p. URL: https://elibrary.ru/item.asp?id=19228810
  4. Boyko V.V. Syndrome of “emotional burnout” in professional communication. St. Petersburg, Sudarynya, Publ., 1999. 28 p.
  5. Vodopyanova N.E. 2009. Psychodiagnostics of stress. Monograph. Moscow: Peter Publ., 2009. 329 p. URL: https://www.elibrary.ru/item.asp?id=20099382
  6. Efimova I.N. Possibilities of researching parental “burnout”. Vestnik MGOU, 2013, no. 4, pp. 31-40.
  7. Knyazev V.N., Remizova E.A. The current state of the problem of emotional burnout in psychological science. Bulletin of the State University of Management, 2017, no. 5, pp. 181-189. URL: https://www.elibrary.ru/item.asp?id=29274542
  8. Nesterova A.A., Aisina R.M., Suslova T.F. Support model for positive socialization of children with autism spectrum disorders (races): complex and interdisciplinary approaches. Education and science, 2016, no. 2 (131), pp. 121-131.
  9. Nesterova A.A., Aisina R.M., Suslova T.F. A guide for parents with a child with autism spectrum disorders: issues of self-help and social development of the child. Moscow, RITM Publ., 2016. 216 p. ISBN 978-5-98422-282-2
  10. Saporovskaya M.V. Emotional burnout and psychological well-being of women in the family. Bulletin of the Kostroma State University. Series: Pedagogy. Psychology. Sociokinetics, 2018, no. 4, pp. 68-73. URL: https://www.elibrary.ru/item.asp?id=36884672
  11. Suslova T.F., Svetlakova O.Yu. Study of parents’ attitudes towards inclusive education of children with autism spectrum disorders in domestic and foreign science. Psychology. Historical and critical reviews and modern research, 2018, vol. 7, no. 5A, pp. 68-77. URL: https://www.elibrary.ru/item.asp?id=36983510
  12. Filippova G.G. Emotional burnout of the mother: a new phenomenon in modern motherhood. Yekaterinburg, USPU Publ., 2018. pp. 53-58. URL: https://www.elibrary.ru/item.asp?id=37250503
  13. Basaran A., Karadavut K.I., Uneri S.O., The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: a comparative study. European Journal of Physical and Rehabilitation Medicine, 2013, vol. 49. pp. 815–822.
  14. Bianchi R., Truchot D., Laurent E. Is burnout solely job-related? A critical comment. Scandinavian Journal of Psychology, 2014, vol. 55, pp. 357–361. DOI: https://doi.org/10.1111/sjop.12119
  15. Kawamoto T., Furutani K., Alimandani M. Preliminary Validation of Japanese Version of the Parental Burnout Inventory and Its Relationship With Perfectionism. Frontiers of psychology, 2018, vol. 9, pp. 970. DOI: https://doi.org/10.3389/fpsyg.2018.00970
  16. Kwiatkski P., Sekulowicz M. Examining the Relationship of Individual Resources and Burnout in Mothers of Children with Disabilities. International journal of special education, 2017, vol. 4, pp. 823-841.
  17. Maslach C., Leiter M.  Understanding the burnout experience: Recent research and its implications for psychiatry. World psychiatry, 2016, vol. 15, pp. 103–111. DOI:  https://doi.org/10.1002/wps.20311
  18. Mikolajczak V., Roskam I.A. A Theoretical and Clinical Framework for Parental Burnout: The Balance Between Risks and Resources (BR2). Front psychol, 2018, vol. 9, pp. 886. DOI: 10.3389/fpsyg.2018.00886
  19. Norberg A.L. Burnout in Mothers and Fathers of Children Surviving Brain Tumour. Journal of Clinical Psychology in Medical Settings, 2007, vol. 14, pp. 130–137. DOI:10.1007/s10880-007-9063-x
  20. Riva R., Forinder U., Arvidson J. Patterns of psychological responses in parents of children. Psycho-Oncology, 2014,  vol. 23. pp. 1307–1313. DOI:  https://doi.org/10.1002/pon.3567
  21. Schaufeli W.B., Leiter M.P., Maslach C. Burnout: 35 years of research and practice. Career development international, 2009, vol. 3, pp. 204–220. DOI:  https://doi.org/10.1108/13620430910966406
  22. Weiss M.J.  Hardiness and Social Support as Predictors of Stress in Mothers of Typical Children, Children with Autism, and Children with Mental Retardation. Autism, 2002, vol. 6 (1), pp. 115–130. DOI: https://doi.org/10.1177/1362361302006001009

For citation:

Suslova T.F., Starovoitova L.I. Psychological and pedagogical work with families of autistic children. CITISE, 2022, no. 2, pp.374-387. DOI: http://doi.org/10.15350/2409-7616.2022.2.33