DOI: http://doi.org/10.15350/2409-7616.2020.1.41

Tatyana F. Suslova – Candidate of Psychological Sciences, Associate Professor of the Department of Social Work, Moscow State Regional University, Moscow, Russian Federation, E-mail: sibir812@mail.ru

Albina A. Nesterova – Doctor of Psychology, Professor, Department of Social Psychology, Moscow State Regional University, Moscow, Russian Federation, ORCID ID: 0000-0002-7830-9337, E-mail: anesterova77@rambler.ru

Rimma M. Aysina – Candidate of Psychological Sciences, Associate Professor, Department of Developmental Psychology named after L. F. Obukhova, Moscow State University of Psychology and Education,  Moscow, Russian Federation, ORCID ID: 0000-0003- 1830-6991, Researcher ID: S-8781-2017, E-mail: reiner@bk.ru

Olga Yu. Svetlakova – Senior Lecturer, Department of Special Education, Institute for Inclusive Education, Maxim Tank, Minsk, Belarusian State, E-mail: olgiza923@gmail.com

 Abstract. The article presents the results of a theoretical and empirical study aimed at identifying barriers to building an inclusive space in modern society. It is noted that the transformation of society’s consciousness towards a positive perception of children with autism spectrum disorders and their families, the education of autistic children in an educational organization is extremely slow. Autism in the society is marked as an epidemic, needs treatment, poses a threat to the family. The problems of a family with an autistic child are identified, associated with the difficulties of integrating children with autism spectrum disorders into the educational and social environment of modern society. It is noted that a family with an autistic child experiences constant difficulties and limitations, often lacking social and moral support from loved ones and acquaintances. Negative trends in the perception of autism, a child with autism spectrum disorders and a family raising a special child are highlighted. Stereotypical views on children with autism spectrum disorders are highlighted: bad manners, uncontrolled behavior, etc. The role of the media in shaping a negative image of a child – autism and his family is examined, in particular, it is noted that the media portrays autism as a negative disaster. Negative myths about the inability of the full functioning of such a family are considered, which are one of the determinants of the formation of stereotypes of perception of autism and stigmatization of children and family. Recommendations are given, the main of which are the use of strategies in the field of creating a positive attitude of society towards children with autism spectrum disorders and their families, such as the formation of an inclusive culture in society and the implementation of inclusive practice, etc.

Keywords: inclusion and society, difficulties in integrating an autistic child into the educational and social environment of society, perception and attitude of society towards children with ASD

References:

1. Aisina R.M., Nesterova A.A., Suslova T.F., Khitryuk V.V. Teachers’ attitudes regarding inclusive education of children with ASD: a review of domestic and foreign studies. Education and Science,  2019, vol. 21, no. 10, pp. 189 – 210. URL: https://www.elibrary.ru/item.asp?id=41575563
2. Bogomolova EA, Spizhenkova M.A. Inclusion: a problem field in the minds and thinking of teachers. Kaluga, 2015, pp. 166-194. URL: https://www.elibrary.ru/item.asp?id=24885101
3. Danilova EA The attitude of parents of children with disabilities and disabilities to inclusive education in the Komi Republic. Ulan-Ude, Siberian State Institute of Culture Publ., 2017, pp. 146-149. URL: https://www.elibrary.ru/item.asp?id=26473536
4. Nesterova A.A., Aisina R.M., Suslova T.F. A guide for parents of a child with autism spectrum disorders: self-esteem and social development issues. Moscow, RITM Publ., 2016, 216 p. URL: https://www.elibrary.ru/item.asp?id=25564017
5. Svetlakova O.Yu., Suslova T.F. Evaluation of inclusive education for children with autism spectrum disorders // Education and upbringing, 2019, no. 3 (327), pp. 30-36.
6. Seagal N.G. Inclusion: Pros and Cons. Kazan, “Fatherland” Publ., 2017, 200 p. URL: https://elibrary.ru/item.asp?id=2929306
7. Suslova T.F. Inclusive education of children with autism spectrum disorders. International Research Journal, 2018, no. 10-2 (76), pp. 85-89. DOI: https://doi.org/10.23670/IRJ.2018.76.10.045
8. Brede J., Remington А.,   Kenny L. Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school. SAGE Journals, 2017, vol. 9, pp.82-91  https://doi.org/10.1177%2F2396941517737511
9. Dosch R. Resisting Normal: Questioning Media Depictions of Autistic Youth and Their Families. Scandinavian Journal of Disability Research, 2019, vol. 21(1), pp.150-157. DOI: http://doi.org/10.16993/sjdr.56
10. Humphrey N., Silis V. Inclusive education for pupils with autistic spectrum disorders in secondary mainstream schools: Teacher attitudes, experience and knowledge. International Journal of Inclusive Education, 2011, vol. 32, pp. 85-92. DOI: https://doi.org/10.1080/13603116.2011.580462
11. Kalyva E. Collaboration Between Parents of Children with Autism Disorders and Mental Health Professinals. Dublin, Ireland Publ., 2012, vol. I, pp. 521-562. DOI: 5772/53966
12. Kinnear S.H., Link B.G., Ballan M.S., Fischbach R.L. Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives. Journal of Autism and Developmental Disorders March, 2016, vol. 46, issue 3, pp. 942–950. DOI: https://doi.org/10.1007/s10803-015-2637-9
13. Kriger B.. Piškur B., Schutze Ch., Jakobs U., Beurskens A., Moser A. Supporting and hindering environments for participation of adolescents diagnosed with autism spectrum disorder: A scoping review. PLoS One, vol. 13(8):e0202071. DOI: https://doi.org/10.1371/journal.pone.0202071
14. Tissot Working together? Parent and local authority views on the process of obtaining appropriate educational provision for children with autism spectrum disorders.  Educational Research, 2011, vol. 53, issue 1, pp. 1-15. DOI: https://doi.org/10.1080/00131881.2011.552228

For citation:

Suslova T.F., Nesterova A.A., Aysina R.M., Svetlakova O.Yu. Family with a child autist in the inclusive space of a modern society. CITISE, 2020, no. 1, pp. 450-460. DOI: http://oi.org/10.5350/2409-7616.2020.1.41